Resources

The African American Faith-Based Bereavement  Initiative (AAFBBI) was created specifically for the African American Christian faith community to improve supports for families experiencing a loss during pregnancy or after a baby is born.  NICHD Resources for Nurse Partners: SIDS Risk Reduction Continuing Education

The SUDC Program is dedicated to increasing awareness of sudden unexpected deaths in childhood, funding crucial research into the causes and prevention of SUDC, and advocating for the needs of families affected by these tragedies. They are the only organization worldwide devoted solely to the needs of families and professionals touched by unexplained death in childhood.   

  

Healthy Native Babies Project                       This packet, which includes the Healthy Native Babies Project Workbook, Healthy Actions for Native Babies Handout, Toolkit disk, and Toolkit User Guide, describes ways to reduce the risk for SIDS among American Indian/Alaska Native babies.

 

Infant Sleep Position and SIDS:  Questions and Answers for Healthcare Providers   This booklet is intended for health care providers and other professionals and answers some of the more common questions about sleep position, safe sleep environment, and SIDS and describes some NICHD-supported research on the topic

 

 March Of Dimes Nursing Modules: Loss and Grief in the Childbearing Period            

Provides a solid foundation of historical, theoretical and clinical knowledge to facilitate effective nursing care of families faced with pregnancy or newborn loss.

 

Articles

American Academy of Pediatrics: SIDS and Other Sleep-Related Infant Deaths: Expansion of Recommendations for a Safe Infant Sleeping Environment (October 2011)                                                                                

A Case Study of Faith-Based Outreach in New York City: Lessons Learned from a Risk Reduction Initiative--Final Report, Association of SIDS and Infant Mortality Programs (July 2004, 15 pp.)

Bereavement Counseling for Sudden Infant Death Syndrome (SIDS) and Infant Mortality: Core Competencies for the Health Care Professional, Association of SIDS and Infant Mortality Programs (May 2004, 39 pp.)

The Unexpected Death of an Infant or Child: Standards for Services to Families, Association of SIDS and Infant Mortality Programs (2001, 23 pp.)

Annotated Bibliography on Grief and Bereavement Following Pregnancy Loss, Perinatal and Infant Death, National Fetal and Infant Mortality Review Program and Association of SIDS and Infant Mortality Programs, January 2009.  More publications and resources at www.nfimr.org.

Related Links

Federal and Federally-funded Agencies

New York State Agencies

National and International Organizations

Last updated by dhummel on February 20, 2014